tag:blogger.com,1999:blog-24314939821518149642012-02-02T11:12:29.317-06:00If you would like to be notified each time I post, email me at <a href="mailto:welcometojoshland@gmail.com">welcometojoshland@gmail.com</a> and I will add you to a mailing list.Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.comBlogger1281100tag:blogger.com,1999:blog-2431493982151814964.post-61458968215320180052012-01-19T07:59:00.028-06:002012-01-30T23:17:29.701-06:00

My friends would ride around me in circles, encouraging my every step as I huffed and puffed up that asphalt incline. Still, I could see it on their faces. That look of confusion and impatience that only an seven year old could utilize with such poise and expertise. I always struggled to keep pace with my bike-riding buddies while I jogged to their houses up hills that would make the ones in San

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com3tag:blogger.com,1999:blog-2431493982151814964.post-26724206783329062522012-01-03T23:53:00.022-06:002012-01-09T22:04:48.666-06:00

I've missed putting words-to-blogger in the past few months. The writing process helps me relieve any stress I'm carrying, though I don't think you would've enjoyed reading anything I wrote during my sabbatical. Every word I ever tried to type was lathered in so much angst and bitterness, stress and fatigue, self-doubt and frustration that even I hated reading it. That's why I decided to spare

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com1tag:blogger.com,1999:blog-2431493982151814964.post-63620412561058687162011-12-22T16:42:00.007-06:002011-12-23T00:20:42.568-06:00

I've been working my butt off to finish this project for over a year now and ladies and gentleman....the day is here! The Moganko For Cystic Fibrosis Awareness Project officially launches right now!I dedicate this to The CF Community, my loved ones, and all the volunteers who made this possible. I also want to dedicate this to my sister Angie, Conner Jones and everyone else who is with us in

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com3tag:blogger.com,1999:blog-2431493982151814964.post-13304874482023216982011-12-15T10:08:00.010-06:002011-12-16T01:29:33.556-06:00

It's been 18 years since Angie left this earth. I can't believe it. She's missed out on A LOT of big things in 18 years. My mind is drawn to 1994, since she missed it by weeks. Here are just a few pop culture milestones:• OJ Simpson's trial. Man she would've been glued to Court TV during that one!• She never saw movies like Forrest Gump, The Lion King or Pulp Fiction.• She never heard music from

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com5tag:blogger.com,1999:blog-2431493982151814964.post-70695474374195669242011-12-01T23:16:00.015-06:002011-12-02T19:12:24.113-06:00

My appearance on Jerry Cahill's Cystic Fibrosis Podcast that was recorded this past summer is up and available for your listening pleasure. Jerry and I are really proud of this podcast because it was unlike any other podcast either one of us had ever done before. Trying to find the right balance of seriousness, humor, and honesty when talking about death in the CF Community is a very tricky task,

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com1tag:blogger.com,1999:blog-2431493982151814964.post-18026293075893988112011-11-25T23:43:00.005-06:002011-11-27T01:18:00.220-06:00

As my self imposed deadline closes in I can feel the stress compound. I carry this load by my own will, but that doesn't make it any easier to bare. I've still got a lot of stuff to do: take care of myself, finish 4 videos -including shots for 2 music videos and editing all 4, finish 1 multi-page photo montage, and stay peaceful. Confession: I'm NOT a project manager. Pretend as I might, I am a

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com6tag:blogger.com,1999:blog-2431493982151814964.post-25322202928577552682011-11-13T21:29:00.022-06:002011-11-22T23:33:42.009-06:00

Moganko has mad beatboxing skills. :-)I created this song because I like rap music and while I'm certainly nothing special when it comes to rhymin' skills, I thought it would be fun to give it a try. My initial thought process went like this:"What's the most ridiculous thing I can do musically to entertain the kids?"Seconds passed..."I could attempt to rap. Yep....that oughta do it. " :-)Singing,

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-46496671974035184892011-11-11T00:00:00.010-06:002011-11-23T00:04:35.693-06:00

I've been here, I've been there, I've been everywhere...I won't apologize for taking a break from blogging, but this post should explain why I did for so long, what I've been up to, and why you'll have to wait until December for consistent blogs again.• I can't believe I'm about to say this, but thank goodness for that long stint of IV antibiotics over the summer, otherwise I don't know if I

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-35737754421304229882011-09-05T14:15:00.010-05:002011-09-08T01:23:58.170-05:00

Uh oh, it's a "taboo topic"! I'm sure I will rattle someone's cage with this post, but not a single word on here is meant to hurt anyone. I'm grieving my father and this is how I do it...by sharing my soul. I'm trying to be open and present during this entire experience with my father. You'd think grieving and loss would be "old hat" to me and I'd fly through the process like a trooper. If

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com7tag:blogger.com,1999:blog-2431493982151814964.post-91041338431402180292011-08-27T00:00:00.020-05:002011-08-30T12:18:46.235-05:00

Tuesday, 8/30/2011 - It is with a heavy, yet thankful heart that I let you all know my father passed away last night. After a VERY rough day, we were able to make him comfortable in his final hours. It was quite beautiful and peaceful, just as he wanted. He did not lose his battle to cancer. Everyone who lives each day against all odds will NEVER lose their fight against any evil. I love

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com9tag:blogger.com,1999:blog-2431493982151814964.post-35005920857288487102011-08-22T09:00:00.014-05:002011-08-22T12:41:48.879-05:00

Joshland Note: This is a long post with several videos, so find a chunk of time where you can really sit and absorb it. It'll be worth it, I promise! When I started making these episodes, I wanted to pay tribute as best I could to the essence of "The Muppet Show"by putting my own CF-spin on them. I hoped they would inspire your children to take care of themselves and motivate the general public

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com1tag:blogger.com,1999:blog-2431493982151814964.post-6174948214285187442011-08-17T00:45:00.004-05:002011-08-17T22:16:11.751-05:00

Everything happens for a reason. I don't know why it does, but I believe it JUST DOES. Before I go any further, it's important that I mention my friend and high school classmate, Amy, who was the main reason this story even happened in the first place. She is remarkable in her own right and if you take a moment to click on this link you'll see why: Woman Conceives Despite Brain Injury Amy

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com1tag:blogger.com,1999:blog-2431493982151814964.post-71177857730356903512011-08-02T11:30:00.011-05:002011-08-11T12:42:07.163-05:00

This blog is my participation in Piper Beatty's "Blogger Challenge" which you can read about at the bottom of this blog post. Here it goes.... There is a scene in Jurassic Park where Dr. Hammond and Dr. Sattler are sitting around a dining room table eating ice cream. Why are they eating ice cream, you ask? Well, because the world has gone to hell in a hand basket. The power has been shut down

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com9tag:blogger.com,1999:blog-2431493982151814964.post-14484284446667396122011-07-19T12:00:00.002-05:002011-07-19T15:49:38.426-05:00

Most of my time in the last month has been spent hooked up to a friggin IV pole for eons during the day, forcing myself to eat and feeling lethargic. It's also been spent wasting countless hours on YouTube learning about the human condition and the sociological implications that occur within that mammoth land of creative individuals and/or copyright infringement.While on my YouTube rampage, I

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com6tag:blogger.com,1999:blog-2431493982151814964.post-76131260657008639642011-06-28T14:04:00.005-05:002011-06-28T15:55:56.299-05:00

I've never been big on talking about my current health situation - PFTs, IVs, and doctor appointments - until I know all of the information about it. Even then I hesitate to share unless it's a very serious situation because I don't want people to worry their pretty little heads about me. IT IS NOT A SERIOUS SITUATION, SO SETTLE DOWN. Don't give me that crap about you not worrying because MANY of

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com9tag:blogger.com,1999:blog-2431493982151814964.post-41278678568015468242011-05-31T15:17:00.004-05:002011-05-31T15:47:42.752-05:00

Becoming the man I want to be has no end. It is a constant, ever-changing miracle that I'm never quite prepared for. Sometime it's like a broken record, skipping without end. Other times it's a smack to the face when I was prepared for a punch to the stomach. There are answers that float like a feather...gently gliding into my hands. There are answers that dangle just out of my reach like a kite

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-25634740843380627112011-05-18T10:59:00.014-05:002011-05-19T10:02:36.921-05:00

Due to the outpouring of concern and love over the past few weeks, it's my goal to focus this blog post on the positive things that are going on amid the chaos of Joshland right now. I won't B.S. you and say things are just fine because they aren't, but I will say they are getting better and here are some of the reasons why:• My allergies and asthma are killing me right now and that affects all

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com3tag:blogger.com,1999:blog-2431493982151814964.post-68227621054377377492011-05-06T09:45:00.016-05:002011-05-10T09:24:12.664-05:00

On Easter Sunday, one of my youngest cousins was playing the game "Would You Rather?". She threw out the choice of being smacked 15 times by a grizzly bear or being pelted with a full-grown lion. Those were her exact words. I immediately went with the grizzly bear because chances are that one swipe from a grizzly bear claw would be the of end me anyways, thus making the other 14 hits null and

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com13tag:blogger.com,1999:blog-2431493982151814964.post-86631646739018176382011-05-01T10:00:00.002-05:002011-05-01T10:00:09.193-05:00

As a part of the "Moganko CF Project" or ("Moganko For CF Project" as I should start calling it), I've been working with an amazing group of a cappella singers from the University of Minnesota called "Basses Wild". Without getting too mushy, I will say that these guys are simply awesome—both in talent and in character. I believe that everything happens for a reason and that I was destined to

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com2tag:blogger.com,1999:blog-2431493982151814964.post-86741756337109548952011-04-25T09:00:00.015-05:002011-04-29T22:52:16.709-05:00

Hey Everyone - Between hospital stays and life in general, it's been chaos in Joshland the past few weeks..hence the lack of blog posts. I'll get back on track soon enough...and hopefully I'll be in a more cheerful mood. I've looked back at my last few months of blogging and I've noticed a lot of "bummer" posts in there. While those feelings are healthy, it's time to take my own advice and move

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com5tag:blogger.com,1999:blog-2431493982151814964.post-61935146985224911962011-04-11T11:35:00.000-05:002011-04-11T14:37:00.692-05:00

***On Tuesday afternoon I laid tensely on the bed in the vascular access procedure room. It didn't help that the doctor placing my PICC line IV had to ask for a second opinion more than once. She gently pierced my skin with a shot of lidocaine that numbed the injection site. I wished the lidocaine would have traveled up to the limbic system of my brain because I was a emotional basket case and

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com14tag:blogger.com,1999:blog-2431493982151814964.post-34251373451526294432011-04-08T15:47:00.007-05:002011-04-08T16:54:33.618-05:00

I had to go into the hospital and start I.Vs this week (more on that in a later blog post), but I made sure it was "Moganko productive" for all my CF kiddos. :-)Ladies and Gentleman! Start your engines!Peaceful Things,Josh

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com6tag:blogger.com,1999:blog-2431493982151814964.post-52490280195085652392011-04-03T10:28:00.000-05:002011-04-03T10:43:06.388-05:00

I'm not giving too much away, but hopefully this will get you excited for the eventual launch date yet to be determined. I couldn't do this without you, CF Community!Peaceful Things,Josh

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com2tag:blogger.com,1999:blog-2431493982151814964.post-6384386140205251822011-03-25T05:45:00.010-05:002011-03-26T15:36:10.986-05:00

I pride myself on being appreciative of everything in my life, but lately I've noticed the things I took for granted while I was younger and the things I might miss out on as I get older...If it's not one thing, it's another. If it's not a lung infection, it's muscle spasms in my cerebral palsy-addled leg. If it's not intestinal blockages, it's complications from mal-absorption of fat-soluble

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com9tag:blogger.com,1999:blog-2431493982151814964.post-81791927531803670412011-03-20T17:51:00.007-05:002011-03-20T19:18:18.409-05:00

This is what I did today to participate in the Rock CF Foundation and CysticLife's collaborative event: "Outrun CF Virtual Run." Congrats to Emily Schaller and Ronnie and Amanda Sharpe on a successful event!I hope you enjoy this video. Please feel free to share it with others on your blogs and on social networking sites. :-)Happy Birthday, Angie. I love you and miss you. I will never give up. I

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com8tag:blogger.com,1999:blog-2431493982151814964.post-76160322907665629422011-03-17T23:06:00.010-05:002011-03-18T12:17:45.503-05:00

In a comment on my last post my friend, Stacey, asked me what my aspirations are for the future. I can honestly say I don't know. I fulfilled every goal I ever wanted to achieve in my life. Every day since then has been a gift. I guess right now I currently aspire to set new goals while continuing to fulfill my life long goals. Overall I am proud and happy.Yet, right now, for some odd reason

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com6tag:blogger.com,1999:blog-2431493982151814964.post-16382320558720432392011-03-13T23:00:00.011-05:002011-03-14T11:08:44.312-05:00

I've been blogging for some time now and - since I have writer's block the size of Mount Rushmore - I thought I'd share some insights about the experience so far:• I've noticed a rise in the quality of my story-telling from when I first started. Unfortunately, the grammatical and punctuation errors remain. Note to self: take breaks, let your wife be your editor, and stop using so many damn

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com10tag:blogger.com,1999:blog-2431493982151814964.post-51987502708212608232011-03-01T09:00:00.003-06:002011-04-11T23:39:17.877-05:00

Angie excelled at any subject she studied and driver's education was no exception. She had that driver's ed manual memorized from front to back. If it were a category on Jeopardy! , she would have been the annoying person in the room answering Alex Trebek in the form of a question before anyone else finished reading the answer. At that point in her life, going to class every week was not

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com8tag:blogger.com,1999:blog-2431493982151814964.post-78644282686620000292011-02-20T02:20:00.003-06:002011-02-27T23:15:33.799-06:00

Joshland Note: It's seems appropriate that this is the first post my newly internet-savvy grandma reads on my blog. Now I have my mother, both of my grandparents, many of my extended family, and at least one nun who roll their eyes at my youthful stupidity. Anyways, Welcome to Joshland, Grandma. :-)There is a great speech from the movie "The Sandlot" - which you are missing out on if you

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com1tag:blogger.com,1999:blog-2431493982151814964.post-88817052926174338412011-02-08T09:33:00.007-06:002011-02-08T21:22:17.579-06:00

Hello Joshland Readers,I've been teasing about "big things" coming up in Joshland in 2011. Well, now it's time to get the ball rolling. And I need your help. I'm calling in a favor. I'm calling all cars!It's one thing for me to talk about my life with CF. My friends, my family, my world. As you saw in my video from last year, they are all very important to me.But now I'm thinking bigger. I'm want

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com2tag:blogger.com,1999:blog-2431493982151814964.post-28564407477102586902011-02-02T22:43:00.016-06:002011-02-03T13:13:51.301-06:00

Joshland Note: I've written about this before, but something struck my heart recently that made me feel the need to write about it again. Sorry for being redundant...Webster's dictionary defines a HERO or HEROINE as: a person admired for their achievements and noble qualities; one who shows great courage...I understand the meaning and how easy it can be to place those virtues on a public figure,

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com5tag:blogger.com,1999:blog-2431493982151814964.post-62500538009718871402011-01-30T22:28:00.026-06:002011-01-31T16:00:44.817-06:00

My mind often wanders and wonders, so on this late and lazy Sunday night I decided to let you in on some of the thoughts I've overthunk this week. Prepare to either have your mind blown or wish you could get the few minutes back that you spent reading this grammatically challenged blog post ...Waiting in line or in a waiting room for a long period of time doesn't bug me. It never has and it

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com3tag:blogger.com,1999:blog-2431493982151814964.post-62547259356741116632011-01-23T22:37:00.032-06:002011-01-27T09:27:46.550-06:00

I've mentioned in previous posts about what a positive thing the internet is to those with cystic fibrosis. We meet people going through the same things we are and we're able stay connected to our real lives even when we are sick. It is a gift that we cherish every day.But there is another side. A side few talk about and some just plain ignore...It seems like every day I read about someone with

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com6tag:blogger.com,1999:blog-2431493982151814964.post-30705881390158941852011-01-22T12:56:00.007-06:002011-01-24T13:54:23.104-06:00

Do you remember the first time you realized (or were made painfully aware of the fact) that you weren't in the upper echelon of attractive people? To be more clear, when did you know you weren't "hot"?Joshland Note: Apologies to the "hot" people reading this. It's not your fault you are incredibly good looking. I'm also sending out some hugs to those haven't realized they are not upper echelon

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com5tag:blogger.com,1999:blog-2431493982151814964.post-54379266889879669692011-01-12T21:39:00.038-06:002011-01-16T22:50:55.362-06:00

Things are progressing...cystic fibrosis is, after all, a "progressive genetic illness".You'll read this as a negative, but I don't think of it that way. It sucks, that's for damn sure, but it's just another day in the the life of a person with a chronic illness. We make the adjustments when we need to and stay the course when we feel our best.Give you an example, you say? Well, okie dokie:I

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com18tag:blogger.com,1999:blog-2431493982151814964.post-10057486229835668752011-01-10T11:23:00.014-06:002011-01-10T15:19:55.343-06:00

I was asked this today by a CF mom. I paraphrased a little, but they are the general questions. I actually get asked these questions all the time, so I thought I'd answer in a blog post. Here is my rambling, honest, and ranting answer:Questions:CF has put you in a place in your life to do an AWESOME amount of good for the CF community, but:1. Don't you get the strangest reactions from people

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com1tag:blogger.com,1999:blog-2431493982151814964.post-41455511863225437412011-01-06T10:00:00.007-06:002011-01-06T12:05:00.533-06:00

True goals and resolutions are ever evolving and ever changing. It's taken me my entire life to realize you have to accomplish small tasks to reach large goals. For instance:The greatest example of success and failure in life is the human relationship. I'm not just talking about romantic relationships either. Platonic relationships between friends and closely bonded families can also fall into

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com5tag:blogger.com,1999:blog-2431493982151814964.post-55905642908817418022010-12-21T10:00:00.009-06:002010-12-21T11:28:28.976-06:00

Joshland Note: After this post, I am taking blogging break for the holidays. My heart needs to heal as does my body. No worries, readers! I will be back - rejuvenated and ready to write again. I am lucky, I am living, I am loved. Nothing else matters."We just don't have anything nice." ~ A statement I overheard from a woman walking out of well known retail store with 2 BAGS WORTH of toys/

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com3tag:blogger.com,1999:blog-2431493982151814964.post-80906305989550684082010-12-15T11:00:00.003-06:002011-01-16T23:10:35.790-06:00

(If you would like to share this with others, please link to it on your blog rather than reposting it. Thank you for understanding how protective I am of my sister's legacy. :-)Joshland Note: I recently rediscovered a book that Angie started writing when she was in junior high school, circa 1991. To give you some perspective:George Bush was the president. Not "W", but his pop."Operation Desert

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com13tag:blogger.com,1999:blog-2431493982151814964.post-79532892060366325902010-12-06T06:15:00.004-06:002010-12-06T06:57:42.389-06:00

I'M ASKED THIS QUESTION EVERY DAY.The funny thing is, the answer that I give is never good enough for everyone. What do I mean?If I give the super positive answer like this,... 'Everything thing is good, a little bumpy right now, but a couple a drugs, a little nap, and some hot chocolate and I'll be good to go."...then people are frustrated because they want to know more. They want to know

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com5tag:blogger.com,1999:blog-2431493982151814964.post-47003231565717989152010-12-01T08:41:00.007-06:002010-12-01T09:53:33.294-06:00

Since I don't have my "Angie Story" ready yet (sorry Sis), I've decided to post a "Moganko Update" a little earlier than I planned...I've been getting my "ducks in a row", so to speak, regarding improvements in my Moganko projects. I have a handful of episodes left before I put my overly ambitious plan in to effect! What is that plan, you ask?THAT IS NONE OF YOUR BUSINESS YET, YOU BUNCH OF SNOOPY

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-82933625363690548022010-11-24T12:00:00.013-06:002010-12-03T02:38:43.360-06:00

Happy Turkey Day (well, almost) everyone! I wish you all the best during the holiday season and safe travels to see your friends and family. :-)I know I've been posting a lot lately, but I felt the need to address this topic/situation right away:Since I've become more of a public figure in the CF world - thanks to "Breathe", this blog, Moganko, and my passion for CF Awareness - I've been

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com0tag:blogger.com,1999:blog-2431493982151814964.post-69441538034975931632010-11-22T23:00:00.006-06:002010-11-23T01:42:18.723-06:00

I feel like my posts have been on the serious/emotional side lately. The holidays are traditionally a difficult and emotional time for me. Lucky for you (sarcasm), some of those emotions have transformed into words on this blog. I have a few posts coming up that I really let loose on, so that's why I needed a silly post. Something to lighten up the mood and remind myself of who I am most of the

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com3tag:blogger.com,1999:blog-2431493982151814964.post-53324552163950620172010-11-17T13:00:00.005-06:002010-11-17T14:31:34.474-06:00

I'd grumble and I'd groan...it was hard to be her little brother.Sometimes Angie would feel the need to rearrange her room. Guess who got to help her do that? I would be in that little room for most of the afternoon shifting her desk from one wall to the other. Angie had me move her desk into the closet once, which required the removal and rearrangement of all the stuff within her closet. Other

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com11tag:blogger.com,1999:blog-2431493982151814964.post-54389157780319603262010-11-15T17:29:00.006-06:002010-11-17T00:19:11.431-06:00

I am all for any organization that helps the CF Community and promotes CF Awareness, so when CysticLife asked it's members to promote their membership drive, I was certainly on board.Take a look at my page that highlights CysticLife and many other positive CF resources here:CF INFO & RELATED SITESHere is my little promo for CysticLife. Not perfect, but I did my best while dealing with crazy

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com0tag:blogger.com,1999:blog-2431493982151814964.post-9557150549610880612010-11-09T13:05:00.009-06:002010-11-12T10:38:33.870-06:00

Joshland Note: When I posted this, I didn't expect it to receive the amount of commentary it has. My position has not changed. I do not like the phrase and probably never will. That being said, I want to make sure that everyone knows this post is not an indictment of those who follow this frame of mind. We live our own lives the way we choose and that is a great thing.This post has turned into a

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com18tag:blogger.com,1999:blog-2431493982151814964.post-74909764269431353902010-11-01T09:59:00.014-05:002011-03-21T02:01:36.207-05:00

It's a crisp fall Sunday...I wake up and my chest isn't hurting. There isn't 15 minutes worth of green and brown mucus expectoration from the moment I open my eyes. Instead it's maybe one or two minutes of clear and clean stuff. It's thankfully one of those mornings I feel rested because I went the whole night without waking up to cough out the junk that blocks my upper and lower lobes or hunched

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com7tag:blogger.com,1999:blog-2431493982151814964.post-58445654012403811712010-10-31T12:15:00.005-05:002010-10-31T12:33:43.351-05:00

Here is an old time radio style Halloween treat for my readers. Enjoy and read along below while you listen to the video!When zombies took over Joshland,it threw the world into chaosYou see, those zombie faces caused "Scooby Doo" chasesWhich left only our wits to save usIt was me, my wife and the pooches,and of course Moganko, my buddy.I'd had puppet in hand, just like I planned.Which proved to

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com3tag:blogger.com,1999:blog-2431493982151814964.post-15516664888422436212010-10-21T13:03:00.008-05:002010-11-18T00:04:30.185-06:00

Q: Were you always compliant with your treatments? Do you have an advice for a child that knows they are very important, but hates to miss anything else going on in the family?A: Do you want the "parent friendly" answer or the honest answer?Too bad because you are getting the honest answer.NO. I was not always compliant with my treatments. It wasn't until I got into college that I really

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com0tag:blogger.com,1999:blog-2431493982151814964.post-60010451904983621602010-10-08T06:27:00.009-05:002010-10-08T08:49:12.712-05:00

I know it's time for me to take a break from writing when my fingers hit the keyboard and nothing happens. So many non-blog things are filling my head with loud and obnoxious distractions. You know what I'm talking about? Those kind of distractions you can't ignore or they'll just get worse. I have plenty of stories left to tell, so for those that come back every week to read my typo-riddled blog

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-16028016288451558592010-09-30T14:30:00.011-05:002010-10-01T09:32:51.821-05:00

Joshland Note: The following post is my honest opinion on the subject of CF and the toll it takes on relationships. It's not calling anyone out, it's not judging anyone on what they do or don't do. It's just an opinion. An honest opinion from a man who is doing his best to keep his blog honest...and full of typos. Oops. :-)Q:Do You Ever Get Burnt Out Talking About CF Stuff?OF COURSE I DO! It's

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-63176442598342698782010-09-26T00:00:00.013-05:002010-09-28T18:08:48.062-05:00

Joshland Note: If you are behind a few posts, click on the link to catch up on all this 5K madness. You should start reading from the bottom of the page to the top. : MY 5K JOURNEYThe race is over. You're now "a runner!" my wife said as she was handing me some water."I'm a hurt runner." I thought to myself....Two minutes into the run I knew it was going to be a long 3.1 miles. The crowd of

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com10tag:blogger.com,1999:blog-2431493982151814964.post-32073696468348090062010-09-24T10:33:00.005-05:002010-09-26T07:47:52.307-05:00

It's time to get jacked up for the race the only way I know how: By being a nerd. I decided to cut a promo about tomorrow's 5K and CF/cerebral palsy old school "80's wrestling style"! You can't take the nerd out of Josh even in a serious situation:Here's my inspiration:Here's my promo:Who's jacked up for race day?!?! Me, BROTHER!! :-)Peaceful, Yet Pumped Up Things,Josh

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com3tag:blogger.com,1999:blog-2431493982151814964.post-3346590037116070062010-09-20T22:57:00.027-05:002010-09-26T07:47:52.307-05:00

Joshland WARNING: I curse a lot in this post. It's how I felt while I was writing. I am who I am and I don't apologize for it. I'm just being honest.Over the past few weeks, I've been training for a 5K. I didn't mention it to many people because I did this on a whim and I was worried that I wouldn't be able to finish what I started. That I would let my friends and family down. Most of all....

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com7tag:blogger.com,1999:blog-2431493982151814964.post-86619271093532214222010-09-16T13:49:00.019-05:002010-12-16T00:14:33.147-06:00

Joshland Note: A few weeks ago I saw this post from one of my favorite blogs, the Unknown Cystic. He already stole this idea from Dr. Nanos at Please Pass The Salt. So I continue the new tradition. I thieved it from him, I did. I thieved it right good.You can read the Unknown Cystic's post (and I highly recommend you read more of his stuff) here:http://unknowncystic.wordpress.com/2010/08/20/

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com5tag:blogger.com,1999:blog-2431493982151814964.post-70594245707082834262010-09-08T00:17:00.005-05:002010-09-08T01:25:45.328-05:00

Joshland Note: It's time for a guest post by one of my best friends, Randy. You know...the guy in the "Voyage To Lambeau Field" video blog. He drives me nuts, but I love the kid to death and I know if I ever need anything he will be there for me instantly. So when I asked him if he wouldn't mind answering a few questions for my readers he was all for it. Now for your reading pleasure, here is a

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com2tag:blogger.com,1999:blog-2431493982151814964.post-67106262808905679822010-09-03T23:26:00.013-05:002010-09-06T09:52:56.586-05:00

For the most part, I'm pretty good at dealing with stressful or life changing events. I'm not saying I have the composure of Ghandi or anything, but I do pretty well processing everything that comes at me on a grand scale. The little stuff can throw me for more of a loop if it sneaks up on me (i.e. - forgetting to pay a bill, wondering if I locked my front door when 99.9% of the time I do),

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com1tag:blogger.com,1999:blog-2431493982151814964.post-53952560087431589322010-08-31T13:15:00.004-05:002010-09-02T15:27:48.988-05:00

Another piece of my soul is forever in Seattle.Last time it was for Breathe. This time (in addition to witnessing some Minnesota Twins victories against the Mariners with the "K Twins Group":-), Carly and I had the pleasure of meeting three very special people. Seeing these kindred spirits in the person was an awesome experience!First, there was Sarah Morris from Breathe 4 Tomorrow Foundation.

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com7tag:blogger.com,1999:blog-2431493982151814964.post-79168280138790783192010-08-25T17:05:00.016-05:002011-02-18T18:14:32.306-06:00

The CF 3 foot rule (or even further away if desired) is the agreed upon safe distance that the CFers should stay apart from each other since the risk of cross contamination was discovered in the early 1990's. (It may have been discovered before then, but that's when I recall noticing it as a kid.)The purpose of this rule is to protect the cystic fibrosis community from sharing bacterium with

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com10tag:blogger.com,1999:blog-2431493982151814964.post-47681522439032564112010-08-17T13:00:00.000-05:002010-08-17T13:52:34.657-05:00

What if the ground trembled and the earth opened up, sending everything down into a ravine of darkness, hate, and fear? What if you saw me hanging from my fingertips off the edge of that ravine? Would you save me?What if - not five minutes beforehand - I told you something about me.....What if I told you that I was a (Insert race, religious/non-religious belief, socio-economic class, sexual

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-34312059864931237572010-08-10T14:00:00.009-05:002010-08-11T09:22:32.912-05:00

So....I do all of these Moganko episodes in my spare time. From concepts and brainstorming to shooting and editing, it's all for fun. I'll shoot a scene or two one day and then edit them while I do my treatments or while I have a moment to myself. I've been able to film them with very simple and low budget techniques that I've learned from my cousin Andy and from YouTube. It's become a lot

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com2tag:blogger.com,1999:blog-2431493982151814964.post-91163707472595089872010-08-03T01:18:00.023-05:002010-08-05T01:53:41.673-05:00

I'm pleased to share another guest post with you. One of the questions I've been asked my whole life is "How did your extended family - especially the children - deal with all of your cystic fibrosis hulabaloo?" (Okay, maybe they didn't say hulabaloo, but you get what I mean.) Who better to ask than my cousin (and one of my closest family members) who grew up right along side Angie and I? Take it

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-34083075697656367432010-07-28T09:00:00.019-05:002010-07-29T11:56:03.714-05:00

This "Joshland Question" was asked anonymously:Q: Are you on the transplant list?As of right now, I am not. I'm at a place with my lungs where keeping up on my therapies and staying active will postpone the need to worry about that for a while...I hope. I think my other organs are doing well, but I guess I'll find out when they're not. :-)Will I ever get a transplant of any kind? I don't really

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com6tag:blogger.com,1999:blog-2431493982151814964.post-66566833204942338152010-07-23T09:00:00.005-05:002010-07-24T00:14:38.100-05:00

Joshland Note: Two posts in a week?!?! I've gone mad! Not really, I just wanted share the new Moganko video on my blog. Enjoy!A lot of people have been asking me "What happened to Moganko?" No worries, boys and girls! Don't put his face on a milk carton just yet. Moganko told me he needed a little summer vacation to unwind (and unstuff?) from the stress of being Moganko. Everybody needs a little

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com5tag:blogger.com,1999:blog-2431493982151814964.post-11294667321654578082010-07-21T09:00:00.025-05:002011-02-28T10:31:05.374-06:00

Joshland Note: As you read this post you might start wondering "Why there are no pictures of my "Little Brother" and why don't I mention his name on here?" An important part of the Big Brother Big Sister Program is following the "online safety guidelines" that have been set to protect privacy issues of both parties. As his mentor, I feel there are a lot of things about my life that he doesn't

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com6tag:blogger.com,1999:blog-2431493982151814964.post-28635525636262841862010-07-14T09:00:00.011-05:002010-07-20T22:46:30.063-05:00

My next "Joshland Question" comes from my friend Jenna - AKA J-Tizzy - from Arkansas who writes a blog called Jenna's Jargon. Here is the question she asked me:Q : What is the most daredevil thing you've ever done, and did you regret doing it? I'm not a daredevil, Jenna...More of a trusting fool...er, soul. Especially when it comes to my two buddies, Chad and Randy. They've talked me into some

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com3tag:blogger.com,1999:blog-2431493982151814964.post-75143877759804785552010-07-07T03:03:00.034-05:002010-07-08T08:53:41.770-05:00

Joshland Note: This story came from A"Joshland Question" I received from my blogging buddy, Jenna from Jenna's Jargon:What is the most daredevil thing you've ever done, and did you regret doing it? Jenna - I promise I'll give you a full answer next post, but this question reminded me of a great story that I had to share with everyone first. It's another ridiculous thing I've done thanks to my

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com5tag:blogger.com,1999:blog-2431493982151814964.post-5107212071306656102010-06-30T17:06:00.019-05:002010-07-29T15:05:48.004-05:00

This illustration is a special gift from my wife and I to the Jones Family. I am happy to share it with you here on Joshland. :-)I know I can't stop you from taking or using this drawing, but I certainly hope you will let it rest here as a constant reminder of my special bond with Conner.~ Love, JoshI wanted to wait until enough time had passed so I could truly reflect on and eloquently express

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com9tag:blogger.com,1999:blog-2431493982151814964.post-18086643830246331562010-06-23T07:00:00.014-05:002010-06-23T16:06:37.366-05:00

Joshland Note: When I created this post I was only going to write about my final thoughts regarding my recent health issues, but then I thought it might be an interesting experience for my readers if I narrated it as well. I AM STILL VERY POSITIVE! THAT WILL NEVER GO AWAY! BUT...there are times in life when I need to be a little frustrated. Even though I got my IV PICC line pulled today (YAHOO

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com14tag:blogger.com,1999:blog-2431493982151814964.post-40001595542534914742010-06-18T08:00:00.039-05:002010-06-18T09:45:08.849-05:00

Joshland Note: A few months ago, I set up an anonymous "Ask Josh From Joshland A Question" site where people could ask me whatever they wanted and I would answer certain ones with a blog post. Here is an answer to a very frequently asked question:Q: Your love of kids is evident, do you think you might want to have them some day? You will make a most excellent father, you know.Ahhhh....to be a

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com7tag:blogger.com,1999:blog-2431493982151814964.post-21471822564520734552010-06-11T08:00:00.006-05:002010-06-11T09:50:02.781-05:00

What's been going on in Joshland? Well...Lots of stuff. I'm doing my best to keep busy, which is really hard to do when your temporarily broken body is calling the shots. Despite all the resting and lack of energy, I've been moving forward on a few projects:- Through family friends, I've connected with a local barbershop/doo wop quartet called Grand Avenue. They've happily agreed to help me with

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com5tag:blogger.com,1999:blog-2431493982151814964.post-77755354041987466492010-06-05T10:02:00.024-05:002010-06-09T23:06:25.504-05:00

"Lord almighty, I feel my temperature rising! Help me, I'm flaming, I must be a hundred and nine! Burning, burning, burning, and nothing can cool me! I just might turn into smoke, but I feel fine!"~ Elvis Presley - Burnin' LoveAnyone else end up in the hospital this weekend and a fever of 102? 'Cause I did. It's my second stay in less than a month, which hasn't happened to me in years! I was

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com6tag:blogger.com,1999:blog-2431493982151814964.post-51313210067167944542010-06-01T11:09:00.003-05:002010-06-01T15:14:45.982-05:00

It's been a wild few weeks. I'm on the mend, but I'm still not 100 %. I'm on A LOT of oral antibiotics which means that my mouth tastes like chalk, sulfur, and bile. Meanwhile, my stomach is doing more loops than a swirly straw sucking up chocolate milk. I could go into further detail about my "exacerbation rehabilitation", but I'll save you the details because, quite honestly, I'm full of

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com6tag:blogger.com,1999:blog-2431493982151814964.post-42284167982407820542010-05-24T11:33:00.020-05:002010-05-31T16:37:10.274-05:00

Fresh out of "The Joint", I boarded a plane headed for California to visit my cousin, Andy. This was something we had planned months before all the hospital garbage happened. It was a weekend full of movies, video games, late morning cafe breakfasts, and driving around L.A. with one of my best friends. Unfortunately, because I wasn't at 100%, I was pretty lame. I was so exhausted that I couldn't

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com2tag:blogger.com,1999:blog-2431493982151814964.post-25817562815509261862010-05-16T23:34:00.014-05:002010-05-17T08:33:23.344-05:00

Hemoptysis ~ the coughing up of blood from the respiratory tract.I saw it hundreds of times from my sister's bedside before I dashed away to get a Kleenex box while she cried from fear and from pain. I've heard of it thousands of times from CF friends, paramedics, doctors, and on televisions shows. It was a word. Until this weekend...I felt just fine when it happened, but sometimes that can be

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com23tag:blogger.com,1999:blog-2431493982151814964.post-85401539899387913842010-05-12T13:54:00.011-05:002010-05-13T08:02:54.125-05:00

The term inspirational is thrown around a lot. So much so that the meaning of it gets lost in the shuffle. In a world filled with so much negativity and hate, people cling to these rays of light that peek through the darkness. The whole concept raises some questions for me...Why does it often take a tragic situation or a life altering event for people to come out of the woodwork and support one

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-12469196432941723062010-05-07T11:55:00.019-05:002010-05-08T00:53:08.679-05:00

This is a story about a woman I really didn't know. When she was with us I was still a child living in my own little world, so focused on my activities and my problems. These things were paramount in my life. I wish I would have been a little older because I missed the opportunity to cultivate a friendship with my grandmother on my mother's side, Camella, AKA "Sparky"...She was a renaissance

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-2611423653417996132010-04-29T17:18:00.007-05:002010-04-29T17:40:38.975-05:00

For some that don't go to my YouTube Channel very often, here is a silly little Moganko short that shows a unique way to use High Frequency Chest Compression (HFCC) Airway Clearance Therapy:I'm so happy that I'm getting such positive responses from families across the world. More episodes are coming soon, including part 2 of the CF Mini Series For Kids. If you'd like to, check out some of the

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-51391051824740891662010-04-25T00:33:00.014-05:002010-04-26T09:58:14.339-05:00

I was never the most popular kid in school. I'm pretty sure my popularity hit its peak in sixth grade when pinning your pants was replaced by rolling them and I never made the transition. There was no reclaiming my social status after that faux pas. I wanted everyone to like me back then and I would do almost anything to be acknowledged or accepted by my peers. Enter the next story...Joshland

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com6tag:blogger.com,1999:blog-2431493982151814964.post-60025217145500566902010-04-19T19:04:00.004-05:002010-04-20T11:01:36.113-05:00

While I am waiting to finish up a few stories I've been working on (They're not up to my own high standards yet. ) I've decided to post this:&amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;lt;a href="http://www.formspring.me/w2joshland"&amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;amp;gt;http://www.formspring.me/w2joshland&amp;amp;amp;amp;amp;amp;amp;amp;

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com0tag:blogger.com,1999:blog-2431493982151814964.post-46639611450085011892010-04-13T23:53:00.006-05:002010-04-14T00:18:31.449-05:00

I made this a few months ago for my little buddy Conner because I wanted to make him smile. His mom Sarah tells me it works and he watches it all the time. Right now he's fighting his heart out against a two-headed CF/Prune Belly Syndrome monster. :-(http://www.notsobrightandshiny.blogspot.com/Like all my little CF buddies, he does not deserve the stuff that comes with cystic fibrosis. $%^* $#@*%

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com3tag:blogger.com,1999:blog-2431493982151814964.post-51210168868161950402010-04-02T08:56:00.005-05:002010-04-02T12:25:45.423-05:00

Joshland Note: I know I've been "CF heavy" on my posts lately, but I wanted to share this video on my blog for those that aren't YouTube or Facebook inclined. This is my CF Awareness Video. I think it promotes reality through positivity, humor, and honesty.It's a continuation of my previous post on how I believe that positivity trumps sympathy in fundraising EVERY SINGLE TIME! Check that post out

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-24588637213327869952010-03-29T16:00:00.015-05:002011-03-30T12:35:59.607-05:00

Joshland Note: It's that time of year again...time for a big fund-raising push for cystic fibrosis non-profits (or "insert charity name here") asking you to donate your time and or money to assist a noble cause. I find it very difficult to fundraise without sounding like I feel sorry for myself or for anyone else. I'm an "optimistic realist." I refuse to say "Oh poor me, give me money because my

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com6tag:blogger.com,1999:blog-2431493982151814964.post-84595416458774193462010-03-24T14:06:00.007-05:002010-03-29T23:27:29.476-05:00

I'm still working on my new stories. My goal is to have one up next week. While you are waiting, I have a quick thing to post..."It's hard for me to listen to others when all I can hear is the sound of my own voice. I have to remember that the moment I think I know everything is the moment I don't know anything at all. Often patience, silence, and a reasonable amount of humility have brought

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com1tag:blogger.com,1999:blog-2431493982151814964.post-38385617655241810542010-03-16T16:26:00.017-05:002010-05-07T13:15:01.703-05:00

Joshland Note: I've been working on quite a few stories, but they aren't quite coming together how I'd like, which is why I haven't posted anything in a while. They will be posted when they are ready. I promise!Early last week I read a few different blog posts about positivity and how it pertains to the CF Community. Each were well written and brought up fine points about the realities of life

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com3tag:blogger.com,1999:blog-2431493982151814964.post-69828990162033614512010-02-18T16:19:00.020-06:002010-02-19T12:25:30.034-06:00

Up until a few years ago I had a thick head of dark hair. Shocking, I know! It grew so fast that I would get it trimmed every two weeks without fail. For most of that time I went to the same barber shop. Tom's Barber Shop. He owned the stereotypical "guys barber shop." From the Guns N Ammo magazines that were strewn about the seats to the smell of freshly mixed shaving cream, it was one of the

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com8tag:blogger.com,1999:blog-2431493982151814964.post-59756909614905951932010-02-08T11:20:00.023-06:002010-02-11T22:05:19.998-06:00

Do you ever wonder what your purpose in life is? For years I've struggled to find my individual spot in the world and ways that I can use my talents to contribute something positive. This blog allows me to do that. I cherish it and I'm so lucky that so many people come back to read whenever I post something new. But I needed a little more...I've got a particularly special place in my heart for

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com10tag:blogger.com,1999:blog-2431493982151814964.post-12654236923445601902010-02-03T12:54:00.011-06:002010-02-03T20:12:14.212-06:00

This past weekend my fellow Breathe Singer, "The Soulful Singing Mermaid" and "Sister from another Mister", Rose, ran in the her first ever half marathon at The ING Miami 1/2 Marathon with 65 Roses CF Team. She met up with two of our CF kinfolk: Emily, Founder of the Rock CF Foundation, and one-year-post-double-lung-transplanter, Mike. I call them the Treacherous Trio. Thanks to all of her hard

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-83972135275033214632010-01-26T00:00:00.011-06:002010-01-26T11:34:12.549-06:00

It's officially the first anniversary of when I started writing my blog...time to tell you why I started....When I am gone MANY years from now someone might ask you "What was it that lit a fire under Josh's ass and made him start writing a self-righteous and pretentious blog/book/memoir thingy?" By reading this post you are required to roll your eyes, smile and say "He did one of those silly

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com5tag:blogger.com,1999:blog-2431493982151814964.post-14494149510499827142010-01-14T09:53:00.003-06:002010-01-14T10:06:45.193-06:00

A little teaser trailer from my friend Moganko. I apologize for his manners ahead of time. :-)I'm really excited about where this is going. I hope that my adventures with this little Muppet will make kids smile and teach them the basics about Cystic Fibrosis every once in a while. I have a few friends lined up to help me out, so look for new posts on Welcome To Joshland on YouTube soon!Peaceful

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-25210474008187140372010-01-10T22:49:00.012-06:002010-02-19T23:31:13.878-06:00

Joshland Note: I had planned on writing this post about Cystic Life before the following events unfolded. Ronnie, you beat me to the punch. Now you made me re-write it!! Damn you, kid.:-)I woke up Sunday morning still groggy and hoarse from a night of karaoke. I could barely keep my eyelids open while logging on to my blog dashboard when I happened to notice a "Welcome To Joshland" title on

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com3tag:blogger.com,1999:blog-2431493982151814964.post-18868962206580554332010-01-03T22:37:00.013-06:002010-06-10T10:05:33.745-05:00

Two things are happening at midnight in our house: Our mini schnauzer, Henry, is begging me to go chase the rabbits that he hears in yard when it is -10 below zero outside. Meanwhile, I am trying to reflect on my 2009. It was pretty outstanding for the most part. I've tried a lot of new things. For instance, I've traveled a little more - which I only got sick from once, and that was more from the

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com9tag:blogger.com,1999:blog-2431493982151814964.post-4479652494829332672009-12-21T12:02:00.020-06:002010-01-13T23:48:09.790-06:00

Shortly after my wife and I first started dating, she made a startling observation about me. At least it was startling to me. Everyone else I asked completely agreed with Carly. She said that I really latch on to past experiences that give me security. Actually, what she just said was "You really liked certain parts of being a child, didn't you?" Yes......Yes, I did. And anyone who knows me sees

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com5tag:blogger.com,1999:blog-2431493982151814964.post-3451690148298734122009-12-15T21:19:00.011-06:002010-01-13T23:48:48.101-06:00

Hello Angie,I don't feel like writing much today. Perhaps, another time I will tell a story about you with more joy and vitality. Right now, I am hurting so much that the words I write are making me well up with tears. You have been gone for 16 years....the same amount of time that you were on this earth fighting CF. It's still blows my mind that you are gone. You and I need to remind our friends

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com2tag:blogger.com,1999:blog-2431493982151814964.post-4772575206011802002009-12-09T22:26:00.009-06:002010-02-19T23:32:21.427-06:00

I was a child when it first appeared at our house. Both my mother and my sister were extremely allergic to pine trees, so we never had a live Christmas tree growing up. Our tree came in a box. Its limbs were hooked one at a time onto a pole and each branch was individually bent upward for maximum hanging ability. It was like having an enormous green twisty tie to manipulate for a month out of the

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-44671680037799484842009-11-30T20:15:00.012-06:002010-12-03T02:28:03.083-06:00

Welcome to the first of my occasional “guest posters”. I hope you enjoy each of these as they arrive.Let me introduce you to my mother, Christine. An ol' fashioned Italian Catholic with a warm heart. She has been a major supporter in my life, my rock, and the eternal optimist that never gave up on me or my future. I asked my mother to answer two frequently asked questions: “What was your family

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com7tag:blogger.com,1999:blog-2431493982151814964.post-38851325144563840312009-11-22T11:20:00.006-06:002010-02-19T23:31:30.744-06:00

Here is a quick post about some of the hulabaloo happening in Joshland...There's been such a positive response about The Breathe Event over the last few weeks. Thank you to everyone who took part in this amazing tribute to Matt Scales, especially CFvoice. I wrote about my experience on the project last month. You can check that post out by clicking here.Because of the impact "Breathe" has had on

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com1tag:blogger.com,1999:blog-2431493982151814964.post-85584315186176638552009-11-14T10:41:00.014-06:002010-01-14T00:00:21.095-06:00

"I can do this...I can do this...I can do this. I can pin him in the first period. He'll underestimate me because I'm scrawny and he sees me coughing."That was what went through my head every time I got on the wrestling mat in high school. I knew if I could get my opponent on his back in the first period, I had a shot at a win. Anything past that and I ran out of gas. But winning wasn't always

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-20565116572198120202009-11-03T18:25:00.022-06:002011-09-09T00:50:49.047-05:00

This past weekend I was lucky enough to be in attendance for Bert Frave...I mean Brett Favre's return to Lambeau Field to face the Green Bay Packers.If you are not a sports nut I'll sum it up: Future Hall of Fame quarterback Brett Favre ended up leaving the Packers after a sixteen year career there under...shall we say...extenuating circumstances. Through a series of events, he eventually became

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com4tag:blogger.com,1999:blog-2431493982151814964.post-12510706916090605132009-10-13T10:30:00.016-05:002010-02-19T23:41:16.162-06:00

In August of 2008, I was at the University of Minnesota for a regular clinic appointment when I noticed a printout sitting on the desk asking if any children or adults would like to tell their stories on a CF podcast. It seemed like a no-brainer for me, since speaking about my life was second nature. I hit all the major points - family, treatments, health, career, and hobbies. During the

Joshhttp://www.blogger.com/profile/04547108849214574148noreply@blogger.com9