Tuesday, June 1, 2010

Thanking For "Thank Yous", Gifts, and Support

It's been a wild few weeks. I'm on the mend, but I'm still not 100 %. I'm on A LOT of oral antibiotics which means that my mouth tastes like chalk, sulfur, and bile. Meanwhile, my stomach is doing more loops than a swirly straw sucking up chocolate milk. I could go into further detail about my "exacerbation rehabilitation", but I'll save you the details because, quite honestly, I'm full of talking about it. It is what it is and I will be fine.

I feel the need to say how thankful I am for all of the love I have in my life. All of the kind emails, thoughtful gifts, and supportive gestures I've received over the past few months have been so heartwarming. Here are a few very special ones:

- My friend Kat from The Blooming Rose Foundation sent me a pencil recreation of a childhood picture of my sister and I. So sweet and thoughtful. It made me cry a little. Yeah, I cry...deal with it! :-) Love ya, Katmandu!

- My friend Sarah finished a quilt made up of my old pro wrestling t-shirts just in time for my birthday. It took her over a year to complete it. She was even able to save the "Ultimate Warrior" shirt my sister gave me that was in ruins because I wore it so often. It's my favorite piece of the quilt and it never fails to bring a smile to my face. Thank you Sarah and all of your loyal assistants on the "West side". Lots of love to all of you. By the way, readers: Before you question my sanity, you should really read these two posts that explain my infatuation with pro wrestling:

My Life and Pro Wrestling: The Real and The Scripted - Part 1

My Life and Pro Wrestling: The Real and The Scripted - Part 2

- Joshland's J-Walkers covered the Saint Paul Great Strides Walk in a sea of orange. I got a few emails from people who knew exactly which team was Josh's Team. That's called good branding. Our team raised around $2,000 dollars, which I think is pretty respectable. Lots of love to all of you.

- Last week, I received an envelope filled to the brim with thank you cards from the students at Eden Prairie High School's "Peer Insights" class. It's a yearly engagement where I speak about my life with cystic fibrosis. I always walk away from it with a better understanding of who I am as a person and what I want to do with my life. In case you didn't know, I love public speaking! I love to make people happy and share my story with others. Not because it's remarkable, but because it's a simple story of a guy who has been able to live a normal life while participating in extraordinary things and facing what some would call a huge obstacle. When I speak to these young adults, I'm well aware that I'm not the only one with obstacles. I hope my story motivates them to achieve their dreams and create new ones like I have. Here is a post I wrote about last year's visit:

My Kindred Spirits

- Yesterday, my blog reached 2,000 hits for the month of May! That is crazy to me, but thank you! I'm thrilled that you enjoy "Welcome to Joshland" and keep coming back for more. Moganko feels this is all because of him, so we should to change the site name to "Welcome to Mogankoland". We are currently in negotiations. :-)

Giving thanks is so important to me, but I have to be honest and say I don't usually send out written "thank yous". I still have bitter memories of watching my mother and my two aunts write out hundreds of thank you cards to the people who attended/donated money at Angela's funeral. To this day, I feel that this is one of those instances where thank you cards are not necessary nor required. It's just one more thing that adds to the stress of a grieving family. Of course, my mother not only felt obligated to do so, but she WANTED to send them out. That's just my mom's way.

I prefer a phone call or a handshake/hug. It's more personal to me and I think it means more when you can have a conversation after the "thank you" instead of just a two second card. I do realize the impact a card can have on a person. All of those "Peer Insights" cards were so sweet and personalized. I'm also aware that I have many scrapbookin' friends who read my blog and send me fantastically intricate birthday and Christmas cards. Please don't stop this tradition because they not only are they cool, but my wife loves to get them too. She has made it known that we should always send thank you and possibly start sending Christmas cards (Stop her Stop her!) because they make people happy. She also knows - while she understands and respects my position - that I am bigger than the bitterness. "Bitter Josh" is not the person she married. She's right. I'm getting better about it, but it's really hard for me.

In closing, if you have ever received a "thank you" in any form from me, know that it's from my heart. Thank goodness I have a blog or I would lose the use of my left hand from cardwriter's cramp. I just quadrupled my productivity. :-)

Peaceful and Thankful Things,



  1. No thanks necessary my friend. Love you too!!

  2. Kat, I LOVE the drawing of Josh and Ang! Great work!
    Josh, I want a print, too...
    Uncle Brian

  3. The drawing is beautiful. Glad you are on the mend. :)

  4. Excellent post. Have to say that I like the name Welcome to Mogankoland. That's a place I'd like to go. Have to imagine it's filled with all kinds of crazy creatures.

    BTW, it's all your fault I ordered a puppet from Amazon today. Not sure what I'll do it yet, but I have a feeling it will come in handy for a post or two. Handy, get it? :-)

    Nice of you to place a link to my site here. It wasn't a requirement when I put yours on mine, but it's awfully nice of you.

  5. Josh,
    Thanks so much for visiting my blog and for sharing the fabulous video. As a mom of young kids living with CF I have really no idea what they go through internally. Externally yes, but I can't fully grasp it yet so thank you for sharing. Have you by chance ever come across families with more than 2 children with CF? We have heard of 2 children in 1 family, but not three. We'd love to connect with another family dealing with the amount of treatments and drugs that we are with 3 children. I'm so glad to hear you are doing well and we'll keep you in our thoughts and prayers :)

  6. Hey Josh,
    It is so cool how you have "branded" your name and are getting the word out about CF and transplant! Good job!
    I HATE oral antibiotics and the side effects they have, but I am not sure if I hate them enough to get another PICC line (to get the medications through). After the pain of the PICC line it is just so much easier to inject yourself with antibiotics.
    Haha anyways, hope your feeling a little better each day!


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