Do you ever wonder what your purpose in life is? For years I've struggled to find my individual spot in the world and ways that I can use my talents to contribute something positive. This blog allows me to do that. I cherish it and I'm so lucky that so many people come back to read whenever I post something new. But I needed a little more...
I've got a particularly special place in my heart for kids, especially all the little CF Warriors that I see at my clinic and across the internet. They have IV's in their arms, are stuck in hospital beds, and they're getting pounded or shaken to clear mucus from their tiny lungs. It can be very scary to be a child with CF. How hard must it be for parents to explain to their little one the importance of doing all this medical stuff? It's something that many of them won't understand until much later in life. When my sister and I were little there was NOTHING to help parents their teach children about the basics of CF without scaring the begeezuz out of them. Nowadays the content is better, but still sorely lacking.
That is why I created this kids show: A CYSTIC FIBROSIS MINI SERIES FOR KIDS. The first episode is entitled: EPISODE 1 - When Moganko Met Joshy.
Throughout this series, I will cover some of the basics of cystic fibrosis care including an unbiased presentation of: respiratory therapy, exercise, taking pills, clinic visits, and other general practices. It will also include some special guests that I have lined up to help me. These are people that provide inspiration to the CF Community and are great role models for newly-diagnosed families. Moms of CF kids, adults with CF, and of course this little Muppet named Moganko who is learning about this illness right along with them.
I had a feeling what I was doing was important, but something wonderful happened yesterday that confirmed it. I received a video "Thank You" from an amazing little boy with CF named Conner. A few weeks ago, I made a little Moganko video to lift his spirits and make him smile. His mother, Sarah (who writes a wonderful and heart-wrenching blog, http://notsobrightandshiny.blogspot.com/), told me that Moganko makes Conner happy while he fights CF. I knew right then that if I could make him happy, I could make others happy too. I could help parents teach their children about cystic fibrosis through humor rather than having all this scary information thrust upon them all at once. That's worth more than anything in the world to me....
So...In honor of my sister, Angela, and all people of the CF Community...here is the first episode:
I AM NOT A DOCTOR. NOTHING YOU SEE IN THESE EPISODES SHOULD BE TAKEN AS MEDICAL ADVICE!
If you like this video, feel free to share it and my YouTube Channel on your blogs and your social networking sites. Give me some feedback as well!
Peaceful and Teaching CF Things,