Monday, March 29, 2010

Ah...To Fundraise....

Joshland Note: It's that time of year again...time for a big fund-raising push for cystic fibrosis non-profits (or "insert charity name here") asking you to donate your time and or money to assist a noble cause. I find it very difficult to fundraise without sounding like I feel sorry for myself or for anyone else. I'm an "optimistic realist." I refuse to say "Oh poor me, give me money because my life sucks." You know what? That's a bunch of B.S. and I'll have none of it. I wouldn't be who I am without every moment of my life...good and bad. So I decided a while ago that my "job" would be to show you a few reasons why people with CF are amazing and why you should donate some - be it a dollar or a million - of your hard earned money to myself and my friends so that we can live longer and happier lives:

It constantly blows my mind how many different genetic mutations there are that cause the physical differences we have in the CF community. The highs and lows of this disease are thrust to the forefront every single day of our lives. Some CFers have the ability to run marathons, drive race cars, compete in bodybuilding contests or cage fighting, sing soulful songs, and destroy the opposition in Ironman triathlons. They are a great example of what it means to thrive against adversity. I love reading these stories and meeting these people that give cystic fibrosis a big punch in the face! It pumps me up!!

But what about my kindred spirits who are fighting in the hospital or waiting on the transplant list? They are just as remarkable! You see them with IV lines sticking out from their bodies. Some are patiently waiting for various organs to come. They have oxygen tubes and dialysis machines attached to them as a "long term temporary" solution until that telephone rings. Their bodies betray them. Do they get sad? Sometimes...and RIGHTLY SO! Do they feel sorry for themselves? HELL NO!!! They don't because they have the hope and the forward thinking that motivates them to show the world that obstacles can be overcome! While they wait to start the next chapter in their lives, these CFers write blogs, organize fundraisers, and sometimes sacrifice themselves to shield others against the sorrows of life. My sister Angela, even in her last few months, comforted the sick children who were in the hospital while she was and supported parents who were struggling to find answers. Families who were at the beginning of a life filled with all sorts of ailments: heart defects, cystic fibrosis, muscular dystrophy, or just facing a routine tonsillectomy. Her love knew no bounds and I'm convinced that's one of the reasons she was here on earth. To show the world that greatness can be achieved by simple gestures of compassion.

But the "average" CFer - what the hell does that mean anyways? - lives their life like the "Average Joe" or "Plain Jane." They have jobs to go to, bills to pay, chores to do, exercise to trudge through (and some times bitch about), doctors to see, and hospitalizations to deal with. They ask the questions and make the choices that anyone else does, but there's always the "extras" attached to them. Things like: Can I work AND stay healthy? Should I or will I believe in the power of love and have faith that another person will choose to walk through my journey with me? Should I have children, adopt children,or just get a pet? Or should I choose to concentrate on strengthening the bonds with family and friends I already cherish? These day to day choices don't always make a huge splash in the real world, but there are enough of us around to make sure that the world will never dry from our constant cannonballs into the pool of life.


Whether we feel like a million bucks or are battling for breath, we are a wonderful community that deserves to live. If you are interested helping us fight CF, go to the CF-related links section on the top of my blog. They'll have plenty of opportunities for you to give. I wouldn't have them on my page if I didn't believe in their message. Here are a few in particular that have big events coming up:

I've already written about Cystic Life. Check that out here:

Cystic Life Blog Post

The Breathe 4 Tomorrow Foundation - An designated 501(c)(3) non profit organization founded by Sarah Morris that provides assistance to CF families nationwide who are dealing with the financial struggles - paying bills, repairing vehicles, medication purchases - that can overwhelm those who are already fighting the monster that is cystic fibrosis.

The Rock CF Foundation - An designated 501(c)(3) non profit organization promoting cystic fibrosis across the world via music and positivity. Check out my bud, Rock CF Founder Emily Schaller, here for more info:

The Blooming Rose Foundation - Another designated 501(c)(3) non profit organzation that provides assistance to new diagnosed families and veteran CFers. You can contact the founder of the BRF, Kat East (CF Momma extraordinaire), via their website.

The Cystic Fibrosis Foundation - The CFF is a designated 501(c)(3) non profit organization that funds research toward finding a cure for CF. CFF's annual Great Strides CF Walk is happening across the country over the course of the next few months. Go to the link below to find a walk in your area that you can participate in or donate to. If you know the name of a walker you can find their team by typing in their name on the Great Strides search engine.

Each of these non-profits are worthy of your hard earned money. They all provide valuable support and services to different areas of the CF Community and I appreciate them all. Contact me if you have any questions about them.

Here's an excerpt from my Great Strides letter last year that goes for the other non-profits as well. I mean EVERY DAMN WORD OF IT:

"I understand that times are tough right now. I will not feel bad if you are not able to give. Your time, love, and friendship are far more valuable to me than money. This is not about me anyways. It is about the kids I see at clinic appointments and the parents I talk to who are struggling to understand why their babies have to live with this disease. I want to raise money so that these little ones won't hurt like I do everyday and Angela did for 16 years. They deserve to live without the mental and physical trials that come with Cystic Fibrosis. I watched it consume Angela. She was a tough and brave soul who never gave up. I raise awareness for her and I am trying to make her proud."

To all the CFers and families of CFers that read this:

I love you all and you have my undying respect. Keep living the dream.

Peaceful, Cure-finding, and Quality of Life Things,



  1. Josh, this is a great post! Mind if I share a link to it on my blog?

  2. I'm inspired! Just joined the Joshland J-Walkers team!

  3. Ah Joshman! Always making me proud to be a momma of a CF champion. And your friend of course. Thanks for the write up as well. :)

  4. Well said my friend, well said. I'll see ya there with my "Team Grove".

  5. This was a GREAT post, Josh!! You made me tear up with your quote at the end;( I find you inspiring..."It's not about me, it's about the kids." As a mom to a young kid with CF, I THANK YOU FOR ALL THAT YOU DO FOR MY SON AND EVERY OTHER LIL' CFer OUT THERE!! YOU ROCK!!!

  6. Well written! Thanks for providing an articulate voice to the CF community! And thank you for contributing to my son's future. We're trying to do our part too:


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